E-health literacy and quality of life in adolescents with congenital heart disease: A descriptive study


Altun M. N. Ş., YILDIZ İ.

Journal of Pediatric Nursing, cilt.89, ss.232-240, 2026 (SCI-Expanded, SSCI, Scopus) identifier identifier

  • Yayın Türü: Makale / Tam Makale
  • Cilt numarası: 89
  • Basım Tarihi: 2026
  • Doi Numarası: 10.1016/j.pedn.2026.04.024
  • Dergi Adı: Journal of Pediatric Nursing
  • Derginin Tarandığı İndeksler: Science Citation Index Expanded (SCI-EXPANDED), Social Sciences Citation Index (SSCI), Scopus, CINAHL, MEDLINE
  • Sayfa Sayıları: ss.232-240
  • Anahtar Kelimeler: Adolescent, Congenital heart defects, Health literacy, Quality of life
  • Sivas Cumhuriyet Üniversitesi Adresli: Evet

Özet

Purpose This study aimed to determine the levels of e-health literacy and quality of life in adolescents with Congenital Heart Disease (CHD), to examine associated factors, and to explore the relationship between e-health literacy and quality of life. Methods This descriptive cross-sectional study was conducted between June and November 2024 in the pediatric cardiovascular surgery and cardiology outpatient clinics of a hospital in Istanbul, Türkiye. The sample consisted of 93 adolescents with CHD. Data were collected using a Descriptive Information Form, the E -Health Literacy Scale for Adolescents, and the Pediatric Quality of Life Inventory (ages 13–18). Data were analyzed using t -tests, ANOVA, Mann–Whitney U tests, Kruskal–Wallis tests, and Pearson correlation analysis. Results The mean e-health literacy score was 29.31 ± 7.51, and the mean quality of life score was 36.72 ± 12.72. Significant differences were found between e-health literacy scores and age and emotional status, and between quality of life scores and sex, health perception, and emotional status ( p < 0.05). No significant correlation was found between total and subscale scores of e-health literacy and quality of life. Conclusions E -health literacy and quality of life levels differed according to certain sociodemographic characteristics; however, e-health literacy alone was not associated with quality of life in adolescents with CHD. Practice implications These findings suggest that nursing-led, structured digital health education and psychosocial support interventions may be necessary to improve quality of life beyond increasing access to online health information.